On average it takes 4 years for a patient to be diagnosed with a rare disease. Examples include Sanfilippo syndrome and cystic fibrosis. In many cases, there are no known treatments or cures for rare diseases. Rare diseases do not receive a lot of research and development funding. In fact, rare diseases only receive about 1% of all funding from the four biggest funding bodies in the UK.
A rare disease is one that affects less than 1 in 2,000 people. In other words, 1 in 17 people will be affected by a rare disease in their lifetime. There are an estimated 6,000 rare diseases but this is likely to be an underestimate. Patients with rare diseases and their families often experience significant stress and uncertainty regarding diagnosis, prognosis, and treatment.
At Bham Pharma, we are passionate about raising awareness about rare diseases. We believe rare diseases are unfairly overlooked. We hope that by doing this, patients will receive a diagnosis sooner. As a company, we are highly experienced at creating eye-catching and informative promotional materials to showcase your rare disease treatment.